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About Facial Paralysis Talks
Facial Paralysis Talks started as a podcast project which was conceptualized in 2019 and officially launched in 2020 on Podbean, Apple Podcasts and Facebook. A small group of volunteers from the international facial paralysis community came together to collaborate on a shared passion to build greater awareness and easier access to authoritative information.
This initial project, an interview with a facial therapist, was published in March, 2020. Later, we created the Facial Paralysis Talks Information Bot, which is an automated information assistant on Facebook Messenger. It was born from Ilan Livne’s bot created for his support group in Israel. Ilan is an amazing person who has made a difference in his country in how medical professionals approach facial paralysis.
To continue creating awareness, we currently post information from facial paralysis medical experts, non-profit organizations that deal with facial conditions, and fellow facial paralysis warriors, on our Facebook page. We would like to collaborate with medical professionals to help get authoritative information and peer support to a patient at the time of diagnosis, when it is most crucial to know more about facial paralysis and the best practices to positively affect outcomes. Want that to happen too? Connect with us.
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Links to authoritative resource pages and books
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Social media support group information
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Podcasts dealing with facial paralysis
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Facial paralysis stories
Facial Paralysis Resources
This resource list is in its infancy and will be updated periodically. Please take note of our medical disclaimer at the bottom of our page. Want to see a resource added in this list? Contact us.
Facial Paralysis Talks Creations
Podcast: What to Do - What to Avoid, March 2020
An interview with Susan Rankin, an experienced facial therapist, who explains facial paralysis in detail and gives tips of things to do and avoid doing while awaiting recovery. If it's easier to read than to listen, download the transcript.
FPT Facial Paralysis Information Bot
Facial Paralysis and Facial Difference Non-Profits
Facial Paralysis UK has an excellent knowledge base for facial paralysis, including massage and stretching videos.
The Foundation for Facial Recovery has a YouTube page with videos of therapy you can try out.
ABOUTFACE Canada provides direct support and advocacy for people with facial differences.
Face Equality International is an alliance of organizations around the world that campaign for face equality.
Psychology of facial difference
Articles and studies for medical professionals, supporters and those directly affected by facial paralysis.
Below are some links to articles and studies about the social and emotional impact of facial paralysis, other facial differences and rare diseases. Links will open in a new window/tab.
Featured this quarter: Articles and Studies by Kathleen R. Bogart, Ph. D
Look Beyond Face Value: The Psychology of Facial Paralysis, Psychology Today, March 1, 2021
Looking beyond the face: A training to improve perceivers’ impressions of people with facial paralysis, Science Direct, February 2015
One Difference Between Inborn and Acquired Disabilities, Adaptation to disability may depend on whether it's congenital or acquired, Psychology Today, December 20, 2021
Socioemotional functioning with facial paralysis: Is there a congenital or acquired advantage?, PubMed, December 2019
The Elephant in the Room: Explaining Facial Difference, New research identifies disclosure styles among people with facial differences, Psychology Today, January 9, 2023
Explaining Facial Difference: To Disclose or Not Disclose?, Stigma reduction must occur at the societal level, Psychology Today, January 10, 2023
Facing Job Interviews When You Have Facial Differences, Advice for people with facial differences for Disability Employment Month, Psychology Today, October 7, 2020
Facing Interviewees with Facial Paralysis, How employers can create equitable interviews for candidates, Psychology Today, August 19, 2020
Why Is the Stigma of Rare Disease So Common?, A new study finds that people with rare diseases face many levels of stigma, Psychology Today, April 19, 2021
A Hidden Community: The Movement for Face Equality, Facial disfigurement is a globally neglected human rights issue, Psychology Today, November 7, 2021
Other
Facial Paralysis Warrior Creations
Unique Smiles: The Facial Paralysis Podcast
An upbeat podcast about the struggles and successes of living with facial paralysis. Hosted by professional stand-up comedian Brian Apprille.
The Hunt for My Smile book collaborative
A compilation of short stories of people dealing with facial paralysis produced by Amy Sameck.
Facial Paralysis Medical and Therapy Experts
Here are some great physical therapists who specialize in facial paralysis.
Jodi Barth: https://facialrecovery.com/team/
Catriona Neville: https://www.facialrehabilitation.com/about-us/catriona-neville
Leah Segolov: https://bellspalsynyc.com/leah-segelov-pt/
Mara Robinson: https://www.facialnervecenter.org/mara-robinson
Jackie Diels: https://www.facialretraining.com/
Susan Rankin: https://www.rankinphysio.com/
This is only a small list of surgical experts. Stay tuned for more.
Dr. Theresa Hadlock at The Facial Nerve Center
Dr. Teresa O at New York Facial Paralysis
Dr. Azzizadeh at The Facial Paralysis Institute
Dr. Amit Kochhar at Pacific Neuroscience Institute, Facial Nerve Disorders
Dr. Michael J. Reilly affiliated with The Center for Facial Recovery
Social Media Support Groups
This is a list of some of the Facebook support groups you can check out. You need a Facebook account to access them. Click the title to access the page. Want a non-Facebook group? Contact us.
1. Bell’s Palsy & Facial Paralysis Support Network Australia New Zealand World
Peer support for all forms of facial paralysis at any stage.
2. Ramsay Hunt Syndrome Support Group
Peer support for those dealing with Ramsay Hunt syndrome at any stage.
Peer support for those dealing with acute facial paralysis at any stage.
4. Bell's Palsy/Facial Paralysis One Year or More
Peer support for those dealing with all forms of long term facial paralysis.
5. פציאליס, בלס פלסי, תסמונת רמזי-האנט ושיתוקי פנים
Hebrew speaking group that may accept other people from around the world.
Cristina's Facial Paralysis Story
My motivation for telling my story is to reach others who may be having a challenging time dealing with the unique things a person dealing with facial paralysis might experience. I have done a lot of research because I deal with long term residuals and partial recovery. This condition can cause a great deal of social isolation. I want you to know you’re not alone.
Facial paralysis onset began in early March, 2018…
Featured Post
Medical Disclaimer:
All Facial Paralysis Talks content, including associated resources, are for information purposes only. The information that is provided on this page and on any webpage where we have added our resources does not replace your relationship with your doctor. Talk to a qualified healthcare professional before making medical decisions or if you have questions about your health.
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